From October 29 to November 2 in the framework of the Roadmap for the introduction of new standards for the diagnosis and treatment of rare diseases in children in the Republic of Kazakhstan for 2017-2019. At the Scientific Center of Pediatrics and Pediatric Surgery, he received training on the topic “Exercises and methods of cleaning the respiratory tract in cystic fibrosis”
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The event was organized by the World Organization of Cystic Fibrosis (Cystic Fibrosis Worldwide), Public Organization “Disabled Children with Cystic Fibrosis”, and the Scientific Center of Pediatrics and Pediatric Surgery, attended by physiotherapists of pulmonology departments from all regions of Kazakhstan, physical therapy exercises (physiotherapy exercises), pulmonology doctors and nurses.
The training in kinesitherapy was led by the leading specialists of the Great Ormond Street Children's Hospital of Great Britain Ammany Prasad and Helen Douglas. During the 5-day training, foreign experts conducted practical exercises for Kazakhstani doctors and nurses on the use of kinesitherapy in patients with cystic fibrosis.
Kinesitherapy is a form of therapeutic physical training. The word "kinesitherapy" comes from the "kinesio" movement and "therapy" - treatment, i.e. treatment by movement. Along with physical exercises, this therapy includes all types of massage, children's games, methods of stretching, treatment through exercises with special devices, breathing, therapeutic exercises, and other types of treatment. Kinesitherapy should be carried out under the strict medical supervision of a trained specialist.
“Specialists participating in the training will be able to further train parents of children with cystic fibrosis in these exercises. Here, a variety of treatment methods will be demonstrated. Kinesitherapy acquired skills can be applied not only in cystic fibrosis, but also in other diseases of broncho-pulmonary system. Modern physiotherapy significantly increases the effect of drug therapy, increases physical performance, a beneficial effect on the course of the disease, thus enhancing the quality of life of patients with cystic fibrosis, "- said the chairman of the Kazakhstan Association of Cystic Fibrosis Indira Izbasarova.
At the opening of the event, the head of the Scientific Center for Pediatrics and Pediatric Surgery, Riza Boranbayeva, noted that training in kinesitherapy will improve the pulmonary environment and will allow one more step in improving the treatment of complex diseases in our country.
“The Ministry of Health pays special attention to rare diseases. In particular, pay attention to the problem of cystic fibrosis, a gene related to diseases. From year to year it improved diagnosis and detection of genetic diseases. The greatest number of patients is observed in the city of Almaty, Astana, East Kazakhstan, and South Kazakhstan, Almaty, Pavlodar and Zhambyl regions. Unfortunately, cystic fibrosis is not curable, as young patients in Kazakhstan do not always live to adulthood. Therefore, our goal is to bring life-small sick children up to 50 years, both in the US and in Europe. Not least the problem is the lack of rehabilitation of children with cystic fibrosis. It should be noted that since 2011, children suffering from cystic fibrosis are given medicines free of charge from the republican budget. A number of regulatory documents have been developed for the development of this activity. Interregional centers for cystic fibrosis will be opened. I hope that today's event will contribute to the development and improvement of this sphere, ”said Zhanar Saduova, Head of the Department of Maternal and Child Health Care, Department of Medical Assistance, Ministry of Health of the Republic of Kazakhstan, at the opening of the event.
Today 105 patients with cystic fibrosis are officially registered in Kazakhstan. Cystic fibrosis is a disease that requires lifelong use of drugs and kinesitherapy. In the lungs, due to accumulating viscous sputum, inflammatory processes develop, causing recurring bronchitis and pneumonia. There is a painful cough - one of the main symptoms of the disease. Experts note that modern kinesitherapy significantly increases the effect of drug treatment, improves pulmonary gas exchange, increases physical performance, increases the life of patients with cystic fibrosis and positively affects the course of the disease.
Reference: Cystic fibrosis is a hereditary disease caused by a gene mutation that affects the permeability of cell walls.
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